We had a great week with Aunt Marriott! On Thursday we discovered Avery's love for cheese puffs. She apparently has lost her lust for grilled cheese and replaced it with cheese puffs. She refuses to eat a whole lot of anything besides these high calorie, addicting treats. Good thing for us we have been told to feed her as many calories as we can get into her. Still, with all that puffy goodness, she is down to 7.9 K this time. That is roughly 17.3 lbs, which is a big drop from the 19.5 lbs she started at in December. I have a feeling next week will bring the nutritionist and an appetite stimulant. Hard to give them a stimulant when they constantly feel sick. We'll see what she says.
On Friday we met up with a little girl named Belle that has a tumor similar to Avery's, in our clinic. Marriott was holding Avery and when we stopped to say hello to Belle and her mom, she asked me if Avery got a new mommy. Ha! We rolled over that one for a good 20 mins. I can't wait for the random comments to come out of Avery's mouth when she is 2 1/2 yrs old!
Monday will be a very busy day. We have an MRI scheduled at 7:15am and after recovery the Scheduler seems to think she'll be up for therapy and dr's visits. We'll see how that goes. MRI is routine, just to check on the tumor bed and make sure nothing suspicious has popped up. She will also have a lumbar puncture and hearing test later in the week, but since her counts are at 0 they don't want to poke her and risk infection. This round has been pretty quiet and we are thankful for that. Now we just need to focus on her eating better...not that she ever did that very well to begin with. We are also looking forward to Tara coming to visit from KC. She arrives on Monday night, just in time for laundry!
If anyone has any high calorie items they think she might like...send em my way! I think she has grown a liking for spicy too. She seemed to like my queso dip I had on my cheese tortilla tonight. Hmmm...they say Chemo can change your taste buds.