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Sunday, January 1, 2017

Happy New Years!

It's hard to believe that 7 years ago we spent an excruciatingly long day waiting for a man we'd just met to give us back our baby after cutting open her brain to remove a tumor the size of a golf ball.  Yes, that was our New Years Eve 2009.

Fast forward 7 years....yes I said 7 years.  Avery is 22 days away from her 8th birthday and 3 months away from that fictitious milestone every cancer warrior aims for...5 years NED...true remission and to some, "cured".  I don't know that we'll ever truly feel that way or use the cured word because we know all too well how unpredictable this nasty cancer can be and how quickly it can return.  And we have lasting daily reminders of its presence in our world for those 4 years of battle....but we also have hope. And grateful hearts. And perseverance.  And much to our amazement, a huge army still standing behind us - just in case.

So 2017 is bound to be a big year for us and we can't wait!

Thursday, August 11, 2016

Fantastic News!!

Hi Everyone,
It's been over six months since my last trip to St Jude and I was so happy to get back there last week (mostly to play with the kitchen down in the clinic)!   Mom and dad seemed a little more nervous than usual, but there was a pretty long break in between my last scans.  I assured them that I was going to pass my test before I went down and wouldn't you know it, I got the best news ever!! Great scans!!! Dr. Armstrong said if I get stable scans in January I might not have to come back until the following January!  I'm not sure Mom liked the thought of that but, with that long of a break she'll have some time to get used to it.  Plus, that will put me 5 years post radiation and at that point the word "remission" might become part of my story! I know everyone will continue to pray for me and I can't thank you enough.  I'm a fighter (I think my mom uses the word Pistol) and a believer...cancer has nothing on this girl!

Love Avery

Tuesday, January 12, 2016

Boo Yeah!

Avery with her doctors at St Jude

Well she did it again!  Another stable scan with no new growth or scary looking new spots.  All of the prior "schmutz" is there and the same as our last scan,  which in the cancer world is about as good as it gets after treatment.  She continues to amaze us and her doctors.  Prognosis at diagnosis was less than 25% after 5 years.  Here we are,  6 years from diagnosis, 2 relapses and nearly 4 years off treatment.  To say she is the exception to the rule is obvious...we are so stinking proud of our warrior!  

Boo yeah cancer!  You can suck it.

6 more months of living it up!

Jenn & Jeremy