It's been over six months since my last trip to St Jude and I was so happy to get back there last week (mostly to play with the kitchen down in the clinic)! Mom and dad seemed a little more nervous than usual, but there was a pretty long break in between my last scans. I assured them that I was going to pass my test before I went down and wouldn't you know it, I got the best news ever!! Great scans!!! Dr. Armstrong said if I get stable scans in January I might not have to come back until the following January! I'm not sure Mom liked the thought of that but, with that long of a break she'll have some time to get used to it. Plus, that will put me 5 years post radiation and at that point the word "remission" might become part of my story! I know everyone will continue to pray for me and I can't thank you enough. I'm a fighter (I think my mom uses the word Pistol) and a believer...cancer has nothing on this girl!
Tuesday, January 12, 2016
Avery with her doctors at St Jude
Well she did it again! Another stable scan with no new growth or scary looking new spots. All of the prior "schmutz" is there and the same as our last scan, which in the cancer world is about as good as it gets after treatment. She continues to amaze us and her doctors. Prognosis at diagnosis was less than 25% after 5 years. Here we are, 6 years from diagnosis, 2 relapses and nearly 4 years off treatment. To say she is the exception to the rule is obvious...we are so stinking proud of our warrior!
Boo yeah cancer! You can suck it.
6 more months of living it up!
Jenn & Jeremy
Posted by Jeremy, Jenn and Avery at 5:57 PM
Sunday, January 10, 2016
One of Avery's favorite things to do is watch old videos of herself on her iPod. The other day she showed me one of her coming down the stairs at the house. It was a simple video-I had asked her to put on socks and a sweater all by herself and she came downstairs having done so (although the cardigan was on backwards). As she comes down the stairs she is telling me about it and then gets distracted by seeing her helmet on the table. Her speech is slower and less pronounced and it's obvious she has hearing issues as her pronunciation for "helmet" comes out something like hemu. The video honestly left me speechless for a few seconds. I had to stop and breathe, before responding with the appropriate, high pitched "oh look at you baby girl!! Look how little you were!" That I know she was looking for. How could that have been 2 and a half years ago? It really put into perspective how far she has come these last few years. Something I tend to forget as she struggles to write her letters and memorize her sight words and use the restroom.
She loves those pictures and videos of herself and for the first time I think it hit me that she is proud of herself for getting so big...something I never realized. As we make our way down to Memphis today, I find that gnawing feeling of scanxiety return and the dread that the trip always brings. This will be the longest we have gone between scans and although she is asymtomatic and we have no reason to expect anything but a stable report, I can't shake the fact that cancer follows no path, no rules, no predictable state and can rear its ugly head at anytime. The last few months we have watched many families say goodbye to their warriors or strap on the gloves to fight the beast a second or third time. So we wait with bated breaths for our scan and results on Tuesday...prayers for stability would be so appreciated...
Posted by Jeremy, Jenn and Avery at 5:02 PM