Today was absolutely beautiful in Memphis! 74 degrees and sunny....even 71 degrees at 8:30 pm! Avery had a day of appts followed by being admitted for round 3 of Chemo.
I have to admit, I did not have the greatest of days myself. For those of you that really know me....ok if you know me even a little, you know I prefer the organized, planned out way of life. In St Jude world...that does not exist. Expectations are rarely met when you want them to be and your day is never what it was supposed to be. They hand out these nice little schedules every morning when you get to the hospital. These are meant to be used as GUIDELINES...not schedules, even though they call them schedules. This means that your 11:15 am appt to see the Dr prior to being admitted could very well take place at 2:45pm and no one will apologize or even acknowledge that they are seeing you 3.5 hrs after they guideline said you would. Uh...hello, I have a baby that needs a nap, playtime, bottle, diaper change -- insert whatever mommy thing you need to do that isn't always easy when you are stuck in a waiting room. I've gotten used to waiting as it is usually due to sick kiddos bumping your place in line when they are sick. I of course want the same privileges when Avery gets sick so I can handle this one. What I am having a terrible time trying to figure out is why they Scheduled us for admission at 1 pm and then tell me to come back at 8 pm. If I'd known that, maybe I wouldn't have stayed up late packing for our in patient trip when I could have come home after our appts and done it! ARGG.....needless to say, I had a few choice words with our interim Nurse Practitioner (poor thing) and then a couple of "crazy mom" conversations with the night nurses on the floor once I got here. I think I have officially pegged myself as the crabby, crazy mom whose kid is still awake at 11 pm...and yes she is still awake right now.
Good news is Avery is getting much stronger now...as a matter of fact, she is attempting to crawl out of her crib at this very moment. Great. And I think Front Tooth #4 is coming in finally. She now loves Lay's South Carolina Tangy BBQ chips....her first actual potato chip. She has accumulated some new skills as well. She can wave bye bye, clap her hands together, and throw a nice little tantrum. All of these she does at random, never when we want her to of course!
To top off our great day we add an oopsy mistake that has landed us back in ISOLATION. Yes, apparently at the end of February when they finally cleared us of all our infections and let us out of isolation (after 18 days) they made a mistake. A culture grew and showed that she still tested positive for the Adno virus. Yes this was a month ago. And yes we've been walking around possibly infecting other kids...ok not really, it's in her poo and she luckily doesn't play with her poo and share it with friends so we should be fine. But still. Back into isolation we go. ugh. It's been a rough day for mommy.
On the bright side, Scott Steffes will be here tomorrow evening to help us out. This will be a much needed distraction for the both of us! It is also Aunt Nikki's Birthday....So Happy Birthday Aunt Nikki! We love you! It's hard to believe that we are starting round 3 already. We are a third of the way there, only 4 more months till we are able to come home to Kansas City and see everyone. Boy we can't wait!
Love from a slightly wound up,