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Sunday, July 22, 2012

4 Month Post Radiation Scan

Jeremy left for Memphis about an hour ago.  The dogs have been farmed out to various friends for the next few days.  Avery is taken a much needed nap after waking up at 5:30 am.  As I finish up the last few things before we get ready to head to the airport I find myself starting to panic...

Avery is scheduled for an MRI tomorrow morning, followed by her LP.  The afternoon will be spent in recovery and then an appointment with her Dentist and Eye Dr.  We'll see how well we've been brushing and if her vision has worsened.  Tuesday we have a long morning of Cognitive Neuro Testing, a visit with her PT Therapist to see how her braces and walker are holding up and then we meet with her Dr for the results of the MRI and LP.  We'll post on facebook about mid afternoon and on here in the evening.  Wednesday is a mix of therapy visits and an Endocrinology follow up.  They will be crucial moving forward as the radiation has huge damaging effects on her growth hormones and thyroid. 

Wednesday evening Avery and I will fly home pretty late, hopefully Jeremy will be home in time to pick us up from the airport.  We'll probably send him home around noon.  So far we haven't had any further complaints from Avery and her UTI - hoping we may have fixed things. 

Please pray that we seem some shrinkage in the remaining tumors...Hell at this point lets just pray that they are gone all together.  They say the radiation can continue "doing it's thing"  for up to 6 months, sometimes even up to 9 months and we are at 4 months, but lets just go with the gone option as I think she deserves it.  It's easy to forget that the world we live in is still not safe from those awful results.  Especially when we've adjusted our lives to some sort of (albeit abnormal) routine.  A birthday party yesterday and an MRI tomorrow.  Just doesn't seem fair...

Big Time Prayers Needed This Week!!


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