Weight loss before the holidays

Avery's still experiencing the runs...poor kids bottom is red as an apple. Her appetite is non existent and for once her glucose was so low they had to give her sugar water! How this sweets addicted kid has low sugar is beyond me. The nurses literally handed me a pixie stick to dump down her throat until the IV kicked in with the sugar water.

Today we had her labs checked again to make sure her electrolytes were in order and she was good. She's been weak and snugly though so it makes us think things are still not back to par. This diahrea is really the pits for us all....lots of laundry, multiple outfit changes and a really sore Tooshie. Last month it was around for about a week so hopefully by Saturday we'll see an improvement. In the mean time, Avery has dropped from 28 lbs to just under 26 and that has us a little concerned. Back to the old people milk we so depended on to maintain her weight while we were at St Jude.

Speaking of....it's that time again. Shopping time that is. Many people have asked us what retailers are big supporters of St Jude so here are some recommended places to spend your money this shopping season:

Williams and Sonoma
Target
Kay Jewlers
Kmart
Dicks Sporting Goods
Old Navy
Gymboree
Crazy Eights
Nine West
Marshall's
Auto Zone
West Elm
Pottery Barn
New York & Company
Charlotte Russe
Ticket Master
Dollar General
Brooks Brothers
Anne Klein
Delta
Jared's
Claire's
American Airlines
Anne Taylor

And then of course after a long day of shopping...feel free to grab a bite to eat at one of these fine establishments!

Chilies
Dominoes Pizza
The Fox & The Hound
The Melting Pot

Beer should be Miller or Coors...unfortunately Budweiser is not on the list...might have to switch beers in this house. There are other places as well...just look for the light green "Give Thanks" campaign symbol while you are out and about. Thank you all for your support!! The kids of St Jude and more importantly us parents thank you from the bottoms of our hearts. Without donations like these, this awful journey could be easily worse when coupled with the stress of finances and costs. I hope none of you ever fully understand what I mean...

Jenn

Round 2

Round 2 of this new clinical trial has been slightly bumpier than we expected.  Chemo was Monday through Friday and she seemed to do just fine with it.  Her appetite has been terrible since we started round 1 and it definitely has not improved with Chemo this week.  Yesterday was a bit rough for Avery and Daddy while I was at work.  The chemo she is on causes the runs and it kicked in yesterday.  By the time I got home she had had 3 baths and 4 outfit changes.  Needless to say the rest of evening was similar but became even more fun when we added projectile vomiting.  Poor kid couldn't keep anything down and just kept begging for water.  Then she'd puke it back up.  We broke down and gave her the Benadryl which of course resulted in a hyper little girl that still wanted WATER. 

This morning we thought we'd gotten past it as she seemed to be in a great mood.  She did really well until this afternoon when the runny poo started again.  Luckily we have managed to get her on the big girl potty half the time which results in a lot less mess and less outfit changes.  Other than that she appears to be feeling fine and even spent the afternoon playing outside with Emma & Lauren from next door.  How crazy is it that it's Nov 13th and it was 64 degrees out today? 

Like normal...the holidays are fast approaching and we find ourselves wondering what this year end will be like.  December 1st Avery will have her next MRI here in Kansas City.  We are praying that this MRI shows no growth in her tumors and no additional tumors present.  After this MRI Jeremy and I will need to decide how to move forward with her treatment.  At this point we are looking at all possible options and weighing the pros and cons out.  We once again are finding ourselves in a tough position, attempting to make the right choices for our daughter.  Please pray that we make the right decisions and have no regrets as we continue down this road.  Please pray for positive test results and minimal side affects for Avery with the rest of this round. 

Jenn

Disney World

Disney World was absolutely amazing!  Avery loved every single minute of it and we are so incredibly grateful to the Make a Wish Foundation, the Give Kids the World Resort and the rest of the teams that made this trip an unfogetable one for our family.  We are so lucky to have also had fantastic friends and family join us to make the memories that much more special...thank you Harper, Chance, Alex and Oliver for coming with us!  And also a big thank you to our friends the Parkers for driving all the way down from Jacksonville to see us.  It was fantastic to spend some time -- outside the hospital -- with all of them.

Avery starts chemo again on Monday -- 5 days in a row, this will be round 2.  Sadly her hair is falling out already...in most of the pictures it looks wild and crazy because when it falls out it gets a bit of a lift to it and drops like a lab shedding his winter coat.  We are so sad to see it go -- that curly hair was really making us giggle.  Please pray we have no problems with this next round and that it does what we need it to do.

Thanks!

Jenn, Jeremy & Avery