Monday, October 3, 2011
Day 1 St Jude Oct 2011
We were able to spend a little time with our friend Belle and her mom Kelley tonight. We haven't seen them since April when we were here last and it was really good to see some friends. Belle is doing well and is going through the spinal/cranial radiation. We had dinner at the Target House and met a new family whose daughter has Medulloblastoma and is currently on a protocol here. It's strange to be the "tenured" family offering up advice and things to ask, but sure enough that is where we found ourselves. As we walked in this morning there was a family checking in for the first time. I couldn't help but think back to 21 months ago when it was us checking in -- desperate to be in a place that knew what to to, but scared to death about what lay ahead. It seems so long ago, but at the same time just yesterday.
Jeremy and I are doing ok. We are of course anxious about getting results, but at the same time very aware of what those results may mean. We can't change God's plan. We can only hope to someday understand it. It may take the next 80 years for us to figure out why we've been chosen to walk this path and we are trying our best to trust in Him, really we are. Wednesday has 2 outcomes for us and we are praying hard that we hear the news we didn't hear last October. Once again we ask for all your prayers that the Dr's in NYC were able to push Avery into remission and that we can start moving forward as a family.
Jenn & Jeremy
Posted by Jeremy, Jenn and Avery at 8:31 PM