Our hearts are heavy today as we learned that 2 more little girls earned their angel wings within the last 24 hours. We posted about sweet Alivia a few weeks ago and sadly she flew home to heaven yesterday. It's heartbreaking and devastating and oh so not fair. As we sat in clinic today, I watched a hospice nurse sit with a mom and her son talking before his pain meds finally were ready and she could change them out. It was all I could do to not lose it right there...
It makes me angry to see all these families here...knowing they are starting this awful journey...and that many of them will end up saying goodbye for now. Knowing our journey has been rough and long and that it is no where close to being over...easy...normal. Tomorrow is our MRI and LP. To say we are scared is an understatement. The last 2 Octobers have brought us horrible news...and while we are now in November, we know the chances are there that we avoided October's routine crappy news only to push it into November. This is our reality. Every day. Every hour. Every minute. She looks good on the outside. She's learning and thriving and driving us nuts...but internally we know things could look very different.
So tonight we pray hard ...very hard. Cause the Christiansen's could use a little break...and Avery is amazing. Enough said.