Week 1 of Treatment

Week one of treatment was a tough one.  The big day of treatment was on Tuesday and no matter how many pre meds were given, Avery was still sick.  After they finally did the injection at 2 pm that afternoon, she became rather uncomfortable and sleepy.  She then got sick prior to the scan, which of course scared off Anesthesia  - resulting in a no go for the scan.  I attempted to have them do the scan with merely her sleeping, but as we put her down on the table, she proceeded to vomit.  Keep in mind she was not allowed to eat prior to this, so the only thing coming up was stomach acid. Poor thing was miserable.  They told us that the first dose, although smaller, is usually the worst for them and they do much better with the consecutive doses.  Let's hope that is the case cause this was a rough one for mommy to witness as well.  Thankfully we had some company during the day so we weren't entirely alone. 

The rest of the week was more of the same -- NPO, crappy scheduling, nothing on time, and a 2 year that was starving.  Apparently adults forget how hard it is to entertain a 2 year old in a plain adult waiting room, who hasn't eaten all day.  Needless to say - my patience ran out and some choice words were used to indicate my frustrations.  Finally Friday came and we had a full day of nothing.  Which is exactly how we spent it.  We had some lunch and took a walk and then had dinner with Laura.  Alex and Angie left for NJ and we watched a little tv together before going to bed. 

Today we are anxiously waiting for Daddy to arrive!  He should be here by 7pm tonight and I have a feeling the day is just going to drag.  The excitement of NYC has worn off and been replaced with a longing to be home.  This next week would have been our last week had we stayed on the original schedule.  Instead, we are beginning week 2 of 5 weeks.  Jeremy and Avery should have a fun week - no scans and no NPO except for Tuesday.  And Uncle Glen is coming out to spend a few days and take her to a Yankees game!  Funny enough, the Yankees are playing the Royals this week.  Not sure what else they plan to do, but I'm sure it will involve food and fun for them all. 

Avery has been on a roll in terms of moving this week.  Lots of walking in her walker and she even got herself undressed and redressed (with very little help) today.  Slowly but surely it is all coming together.  We can't wait to get her back to KC and back in rehab so we can work more on the walking and talking.  No new words to report yet, but any day I'm sure she is just going to look at me and a whole sentence will come out.  Until then we will stick to Daddy, Ball and Jersey.

Jenn