St Jude Give Thanks Walk

St Jude Walk: Team Avery

Only one more day left to sign up or donate to the St Jude Give Thanks Walk.  We are very excited to report that Team Avery has contributed over $3000 to the kids of St Jude.  Kansas City is doing a fabulous job in raising funds and is close to hitting their goal of $50,000.

Saturday will be chilly - there's no doubt about that. If you are able to come, please dress warm!  We plan to arrive between 8:30 and 8:45 am and the walk starts at 9:30 am.  We will be wearing black and as much skull and crossbones gear that we can find, and we'll have a Team Avery sign with us.  If you can't find us, give my phone a call or text and I will tell you where we are.  Since this is our first year, I can't give a location yet on where we will meet.

We sure appreciate the support and are very excited for Avery to see all those people again walking for her and her friends at St Jude.  She's over a year older than the last time we walked for her -- I am hoping she will understand things a little more and feel all that love and support that Jeremy and I feel at an event like this.  We can't do what we do without the prayers, love and support of all of you....and of course without the amazing direction and care from St Jude.  1.6 million dollars is what it takes to run St Jude for a day...While we didn't quite hit that, I am pretty darn proud of what we did!

Jenn

November MRI

Avery's MRI final results came back stable.  Tumors are still present but they are stable.  The LP was clear of cancer cells and her spine is clear.  Thank you all for the continued prayers...here's to 3 more months on normal.  Or our new normal...

Jenn

Heaven earned 2 new angels this week...

Our hearts are heavy today as we learned that 2 more little girls earned their angel wings within the last 24 hours.  We posted about sweet Alivia a few weeks ago and sadly she flew home to heaven yesterday.  It's heartbreaking and devastating and oh so not fair.  As we sat in clinic today, I watched a hospice nurse sit with a mom and her son talking before his pain meds finally were ready and she could change them out.  It was all I could do to not lose it right there...

It makes me angry to see all these families here...knowing they are starting this awful journey...and that many of them will end up saying goodbye for now.  Knowing our journey has been rough and long and that it is no where close to being over...easy...normal.  Tomorrow is our MRI and LP.  To say we are scared is an understatement.  The last 2 Octobers have brought us horrible news...and while we are now in November, we know the chances are there that we avoided October's routine crappy news only to push it into November.   This is our reality.  Every day.  Every hour.  Every minute.   She looks good on the outside.  She's learning and thriving and driving us nuts...but internally we know things  could look very different.

So tonight we pray hard ...very hard.  Cause the Christiansen's could use a little break...and Avery is amazing.  Enough said.

Jenn