Update

Avery's MRI is done. We are waiting for the Dr to finish up the LP. Once she wakes up we will get her shunt reprogrammed and go find some food. The plan is to meet with our team at 3 pm today for results. We'll post once we've had time to digest. Kepp em crossed...

Jenn

Scanxiety Week

It's hard to believe that its been 2 months already but it has.  Her MRI is scheduled for 7 am on Friday.  We hope to have results by sometime in the afternoon.  Again, results will be shared with our Neuro Oncology team at St Jude before any decisions are made so it will most likely be Tuesday before we post anything. 

It's crazy but on Saturday Avery will be turning "twee".  We have a big party planned at a bounce house place here in Shawnee and we plan to bounce the toddlers into oblivion...or at least into a really good nap for Saturday afternoon.  Mickey Mouse is the theme for the party and it was a decision made entirely by her.  I really thought she'd want a Rapunzel party or at least Strawberry Shortcake party but she opted for Mickey Mouse instead.  It's hard to believe that it's been a year since we celebrated our Hero turning 2.  She's come so far in the last 12 months...talking, standing better, communicating so well and trying so hard to be the terrible 2 yr old that we want her to be...

Turning 2 - Super Hero Party

This week, just shy of 3

We'll get some pictures out of the party this weekend.  And we'll get word out of the scans as quickly as we can.  Please pray for us this week as we once again are faced with these difficult decisions.  Please pray that God leads us through this time and gives us courage and strength to find the right path to continue on in this journey.  Please pray for all of our cancer family friends that are facing this same situation here in the next few weeks and are looking for the same positive outcome that we are with scans.  Most importantly, kiss those kids twice tonight...no matter how crazy they drove you today. 

Jenn

Happy New Year!

It's hard to believe that we've finally left 2011 and are moving into 2012.  For most, the new year offers hope for an improvement, a change, an adventure.  For us it offers only the very real possibilty of a terrible year.  It's hard not to see it that way, standing where we are.  We are hopeful that we will continue to make good decisions in the new year and that they will yield the amazing results we are so desperately seeking.  But we are realistic that this year could prove to be even worse than 2011.  So for now, we step gingerly into the new year - not wanting to make too many waves for fear that someone might notice and we move forward with the unknown.

Thank you to you all that have supported us  - emotionally, spiritually and financially.  Each is so very important to the survival of this family and it is a debt we will never be able to pay back.  For all your generousity in 2010, 2011 and for the yet to come....we thank you from the bottom of our butts....they are much bigger. : )

Jenn