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Saturday, September 27, 2014

Sorry for the delay in posting Avery's MRI results.  It's always a game of catch up when we get back home and we didn't get the final results of the LP until we were on our way back to KC.  It was great to be back at St. Jude.  We all felt a since of relief when we walked in the door.  The good news is that the MRI showed no tumor growth and her LP was clear so her scans were stable!!!  The bad news is she has developed a small hemorrhagic bleed.  This radiation damage is very common, however Avery's is in her brain stem and that makes it a little tricky.  Her risk for stroke, seizures, and paralysis have now gone up and we will need to keep a close eye on her behavior and look for those signs.  There is not a lot that they do for these when they are small and if it does get larger surgery still might not be an option because of it's location.  Avery's Dr. was concerned but stressed that if it stayed small that it shouldn't be a big issue.  So it's a wait and see approach for now.  We will go back in 4 months to do another MRI and discuss any further action if needed.  Please pray that this resolves itself and Avery continues to have stable scans.  Thanks again for you continued support. 

1 comment:

  1. Jenn,

    I am soo sorry about the bleed. That is scary; I pray it resolves with NO ill effects.

    PTL for the good news!!

    Love ya,
    C.O.L.E.s Foundation
    (Caring Openly, Loving Eternally)