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Sunday, June 2, 2013

St Jude Trip Today

Well 3 months has come and gone more quickly than it ever has for us.  We are on our way to St Jude now and hoping to make it there by 9 pm tonight.  I of course forgot to make reservations at the Grizzly House so we may end up at the hotel instead...hopefully not as that makes the day more complicated.  So far so good on the drive.  Avery is content with her movie and some chocolate covered pretzels.  Emmett is contemplating another nap and has so far been pretty quiet.  

We have appointments tomorrow morning at Le Bonheur to get some diagnostics done on her inner plumbing.  Hoping to find out something about her issues with UTI's and constipation.  Her MRI is slated for Tuesday.  She will meet up with all the other drs in the next 3 days as well to make sure things are looking good.  

A big thanks to those that joined us yesterday for the KC Cancer Crawl.  We had. Great time while raising funds for a bunch of fabulous charities all working towards finding a cure.  Team Avery rocked!  

Kick those prayers into high new "spots" and shrinkage in all other areas which would mean radiation damage rather than tumors.  Someday they will have machines sophisticated enough to differentiate between tumor and damage...never mind- when they have that they will have a cure too.  


1 comment:

  1. Hey Jenn,

    I pray for GREATTTTTT news for Avery!!!


    ♥♥ Love ya!! ♥♥
    C.O.L.E.'s Foundation
    (Caring Openly, Loving Eternally)