Avery is working hard on standing and walking and gets more daring each day in her attempts to maneuver around. We are still trying to gain as much independence as we can before the start of school. She has an IEP lined out that includes daily special ed time, weekly therapy times and assistance from a para. We are of course nervous for this new step. She is not yet in control of her bladder thanks to that damn radiation, which means she will be dealing with pull ups and wiping and potty breaks outside of the classroom. Right now she has a bathroom in the classroom and the teachers assist her if she needs it. This makes me really nervous especially because she is so OCD about any spills on herself. We change our clothes daily because we have a drop of water on our shirt. Control what you can - right?
Our holiday weekend was spent in Iowa visiting the big family clan and hanging out at the pond. The kids loved the fireworks and were enthralled both nights when they got to see them. Lots of candy, sweets, late nights and no sleep. It was great to see all of our cousins and spend time with them.
Scans have been set for Sept 23rd. Late I know but the 4 month appt was not fitting well with our family vacation to MN and the start of school so we pushed it back a bit. Makes us nervous, but no signs of any issues as of yet. The appointments will resume the 4 month cycle again after that because I don't need any additional stress and this extra 2 months will most likely freak me out more than any other wait. We have never waited this long between scans. 4 years of at least every 3 months....well it has us on edge for sure.
We have ordered more koozies for anyone that is looking to get some. They are $2 a piece and I will have them by Friday. Just let me know so I can hold some for you. I also have bracelets and keychains in case anyone is in need of a new one. I know my keychain was a little yucky at this point -- 3 years I suppose is about the max on keeping that thing usable.
Jenn
