Avery was to begin Day 8 of Chemo today, however the Dr's decided to push it back a day due to a low count on her Nutrifils. The concept is still a little over my head, but the basic idea is that her Nutrifils were 1000 yesterday morning and then at 2 am they had dropped to 400. By 8:30 they were only up to 500. This could be due to her UTI and Stomach Bug so they wanted to give her an extra day to build back up before they wipe them out again. This of course messes up the entire day count in my planner as they simply push "day 8" back a day. Needless to say, I need whiteout now.
We waited for this evening to venture down the road of milk products, but as of 9:30 pm Avery has successfully not puked after a bottle. YEA!! This chemo tomorrow however will put us back in full on puke patrol. At this point, I am winning with only one puke while Jeremy is lagging with 2.
Tomorrow is going to be tough. She will be getting 3 different chemo drugs which will affect her pretty dramatically. Please pray that they aren't too bad...this kiddo could really use a break from this past week. She sure misses all her buddies, family and friends..... XOXO (The video is from my cell phone and I never hold it the right way - sorry)
Avery's Journey - Childrens Brain Cancer
Saturday, January 30, 2010
Friday, January 29, 2010
Dehydration
Thanks to the wonderful bug that made it's way through the Christiansen clan....we are now worried about dehydration. Dr's are slightly nervous that she hasn't had a lot of urine output in the last 24 hrs. This of course is due to the fact that she spent a majority of that puking on her parents. Yes, the score is now Daddy 2 Mommy 1 -- in this case me being the winner. I think we did 3 loads of laundry last night purely for pjs....I did not pack enough to make it past 4 pukes! Good news is she doesn't seem to mind the puking. We finally called the dr last night after the 3rd time and she indicated that when someone has a bug like this the body is not so receptive to lactose products. Hmmm.....that would explain her puking up the PediaSure and Formula for the last 3 days!! She is now drinking PediaLyte and water only. Dumb us.
We had an ultrasound done today on her kidney's just to make sure everything is working right. They also hooked her up for fluids for 30 mins and will hook her up again tonight when we go back in for days 8-12 of chemo. All in all she looks great and is acting fine and so far has not puked today.
On the up side....it is freezing rain today. Target House is 4 miles from the hospital and all staff were let go early of course -- can anyone say dejavu? (this was the case in the KC hospital as well -- weather or holidays) And one last topper for the day is Avery is teething. Are you kidding me?! The kid has 2 teeth -- got them at 6 months, and right now is when the others decide to join us? Thank the Lord this girl is a tough one!
Jenn & Jeremy
We had an ultrasound done today on her kidney's just to make sure everything is working right. They also hooked her up for fluids for 30 mins and will hook her up again tonight when we go back in for days 8-12 of chemo. All in all she looks great and is acting fine and so far has not puked today.
On the up side....it is freezing rain today. Target House is 4 miles from the hospital and all staff were let go early of course -- can anyone say dejavu? (this was the case in the KC hospital as well -- weather or holidays) And one last topper for the day is Avery is teething. Are you kidding me?! The kid has 2 teeth -- got them at 6 months, and right now is when the others decide to join us? Thank the Lord this girl is a tough one!
Jenn & Jeremy
Thursday, January 28, 2010
Stomach Bug... Part 2
It's official...they are all 3 sick now. Seriously, just what they needed on top of everything else, right? Please pray that this passes quickly. Avery was discharged last night, so they have been trying to get some rest at the apartment. She goes back in for her second dose of chemo tomorrow, so we're crossing our fingers that they all wake up feeling better as they begin their next in-patient stint.
Jenn's mom, Kristie, is still taking volunteers to go down to Memphis and help Jenn out with Avery's care while Jeremy is in Kansas City working. Just wanted to let you know that if any of Jeremy's friends plan to go down to help, we'll schedule you so that your time overlaps when Jeremy will be there, so that you can spend some time with him as well. Please email Kristie at kristieg@bsp-mail.com if you are able to make the trip. The support for Jenn will be so important, but this will also provide Jeremy with some peace of mind that his girls aren't alone when he isn't able to be there.
Jenn's mom, Kristie, is still taking volunteers to go down to Memphis and help Jenn out with Avery's care while Jeremy is in Kansas City working. Just wanted to let you know that if any of Jeremy's friends plan to go down to help, we'll schedule you so that your time overlaps when Jeremy will be there, so that you can spend some time with him as well. Please email Kristie at kristieg@bsp-mail.com if you are able to make the trip. The support for Jenn will be so important, but this will also provide Jeremy with some peace of mind that his girls aren't alone when he isn't able to be there.
Subscribe to:
Posts (Atom)