So far so good...

Teeth looked good, although they need a cleaning.  Hearing looked the same.  No decrease in ability.  Speech measured just a touch below average on 2 areas and average on the other.  Need to work on plurals, course when you can't hear the S on the end of the words that can make plurals a little hard to catch onto.  

Next up is vision.  Expecting stable there as well since her eyes looked great in June and patching seemed to be helping her wandering right eye.   Tomorrow she has her MRI and LP in the am.  Results will most likely be Wednesday.  

Today was a good day for us.  

Countdown to St Jude

It's hard to believe but our next trip to St Jude is coming up again.  Nana is coming down to stay with Emmett since 11 months old is not the age to lock a kid into a stroller for 3 days.  Hard to believe that Avery was this age when this whole nightmare of a journey began 3.5 years ago.   My how fast his first year has flown by compared to hers.  I remember sitting in agony waiting for her to hit her next milestone...with Emmett we turn around and think holy crap!  He's doing that already???

What a different path we are on now.  

Jenn

Corn on the cob for our toothless wonder...

We made the long haul up to MN on Wednesday night so we could spend the weekend at the cabin.  It was great to see the Johnson side of the family and of course spend some quality time with nana, GJ, Uncle Rob and Miss Cory!

The kids loved the lake and all the fun activities Nana planned out.  We watched a movie under the stars,  sat down by the dock, rode on the tractor, played with fishes, watched the puppies swim and ate like pigs.  Avery loved her corn on the cob,  but since she has no front teeth she mainly enjoyed the butter and salt.  Whatever works right? We spent the day with all the Johnson clan yesterday, even though it rained all day and had a great time.  Avery was very sad to leave. 

The trip back to KC is a long one for sure.  We just made it to Des Moines and she is begging to go to Nana's house now. The last 3 hrs are going to be the most fun I think...

Loving the summer fun...the normalcy.

Jenn